2 Jun

As with any parent, raising a daughter with special needs is a 24 hour a day job.  The difference is, there are many times with her when there is no break.  It can seem unending.  And hopeless.


I said to my dad once that I wished I could just have one year of respite;  a normal life, with a normal kid, just like everyone else. 


And he gave me a piece of advice that has truly sustained me over the past few years.  He said (and obviously, I’m paraphrasing) “You know, your rest may never come in the form of a whole year, or a whole month, or even a whole week.  God will give you rest, but it may be in small bursts instead.  So take the good days, and bank them.  That’s your respite.”


I started following his advice, and it has made a huge difference.  Because instead of waiting for that bigmomentinthefuturewheneverythingisgoingtobegreatforawhile, now I see the small moments.  The little victories.  And I appreciate them for what they are:  Little respites given by God.  Little breaks.  Little breaths.


Thanks, God, for the rest.


5 Responses to “Respite”

  1. Sarah June 2, 2008 at 12:51 pm #

    That’s good advice 😀 I do try to follow…but as you know, I still have my bad days 😀

  2. Amy Seay June 2, 2008 at 1:25 pm #

    Your in good company! Thanks for the advice. I miss you!

  3. Julie June 3, 2008 at 2:57 pm #

    One day at a time…AMEN!

  4. anymommy June 3, 2008 at 10:10 pm #

    Wow. Now I love your Dad. And, I understand your feelings. I know about wanting just one outing, just one day to go smoothly and ‘normally.’ Your an amazing mom.

  5. Bond, Ja...well... you know the rest June 4, 2008 at 1:52 pm #

    Mine faux-graduated from high school this weekend (certificate pending 2 summer school classes). I was such a proud mamma to see him finally walk the stage. At that moment, I took a deep breath and rested. But that is all I will allow myself. Now it all starts again with real life, a much harder task. He still needs me.

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