I had this post knocking around in my head for a while. Once I finally wrote it I’ve been afraid to publish it. I’m not sure why. So this morning I’m browsing through a couple of my favorite blogs and I discover that my girl AnyMommy has done it again. She’s posted the hard stuff. The REALLY hard stuff. And I got inspired. If she can do it, so can I. So thanks, Any!! Here we go.
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You know how as a mom you sometimes just know? I mean, deep in your gut, you know. It’s just a feeling, but it almost defies description. It’s not necessarily rational, or even based on facts. But it’s very real. You just know.
In December of 2001 my Sweet Pea was just turning three. She had been a very easy baby but over the last six months something had changed. And it wasn’t just the terrible twos or terrifying threes. (Although they definitely were.) This was different. Her preschool teacher called me to discuss some problem behaviors. Right there I knew we had a problem; you shouldn’t have to talk to your child’s PRESCHOOL teacher about behavior problems. This teacher was a God-send; very loving, very patient, and very astute. I asked her if she thought Sweet Pea was hearing everything…she responded that she was actually concerned about her hearing. I made an appointment with our ENT, a dear friend and colleague of mine from the OR, but deep in my gut I already knew.
It was during one of those beautiful evening walks that I first had my suspicions. Sweet Pea was in the stroller and there was a yappy dog up ahead making all kinds of racket. I said “Sweet Pea, where’s the doggie?” and she turned around to look behind her. This dog was loud. And right on the sidewalk up ahead of us. And she turned around. I knew.
Another day a helicopter flew right overhead and she didn’t even flinch. It was loud. And I knew.
We went to the ENT appointment where they put us in that little booth for the hearing test. Sweet Pea and I had done this just six months earlier, and at that time her hearing was normal. But I knew something had changed. The audiologist held a piece of paper over her mouth and said “point to the hot dog”. And my Sweet Pea said “Can you move that piece of paper so I can see what you’re saying?”
I knew.
Our ENT didn’t want to rush to a diagnosis, so we continued testing all the way through a sedated ABR, where they see your brain’s reaction to sound. At the end of that test the audiologist said “Well, your daughter has mild-to-moderate sensorineural hearing loss.” I nodded, not surprised. However, when she explained that we should fit Sweet Pea for hearing aids, you could’ve picked me up off the floor.
I don’t know why THAT was the shock, but it was. Hearing Aids? That means there’s more to this than a few nasty ear infections and the need for more/better/different antibiotics. This is a lifelong deal. Life won’t ever be the same.
Our child is hearing impaired.
There are lots of reasons children lose their hearing. Some are detectable at birth, but Pea was born the year before mandatory newborn hearing testing. In any case, Pea clearly had normal hearing for the first two and a half years of her life. We know this because the child can TALK. (I don’t know where she gets that!) She said her first words at 9 months and hasn’t really shut up since. And thank God for that because one of the hardest things kids with hearing loss have to deal with is speech. She does receive speech therapy at school, but her issues are minimal. We are also very blessed that she was clever enough to figure out how to read lips. When they initially tested her for special services the teachers couldn’t believe how good her lipreading skills were. What can I say? Girlfriend is determined!
I suppose whether your child is adopted or biological you imagine the fantasy kid. You know, perfectly behaved, totally adorable, brilliant beyond words, and an Olympic athlete to boot. And then at some point, whether your child is adopted or biological, you figure out that they are actually human. Not a fantasy. And that life isn’t going to be perfect. It’s going to be LIFE…life with trials and imperfections and challenges and blessings and victories.
Some days the challenges almost do me in. Because it’s not fair. It’s not fair that she has to wear hearing aids and no one else does. It’s not fair that she has to answer questions that curious children ask about her aids. It’s not fair that in the swimming pool she is almost completely deaf and can’t really play Marco Polo because it’s a game that’s all about hearing. It’s not fair that when I read books at bedtime she has to crane her neck so she can see my lips in order to know what I’m saying. It’s not fair. But it’s life.
And just like I knew there was something wrong, somewhere deep, deep down in my soul I know she’s an overcomer. A hurdler. And she’s going to come out on top. It’s going to be painful, there’s no doubt about that. But every once in a while I catch a glimpse of the woman she’s going to become, and I just know.